My primary diagnosis is Primary Immune Deficiency Disease (PIDD) and the more specific diagnosis is Specific Antibody Disorder (SAD) – I donimage‘t make enough good quality IgA, the subclass antibody that, among other things, protects my mucus membranes. I was diagnosed in march 2012. According to the Mayo Clinic, primary immunodeficiency disorders — also called primary immune disorders or primary immunodeficiency — weaken the immune system, allowing repeated infections and other health problems to occur more easily.

For the most part, we are born with or without these immunities but there is usually an environmental trigger that “flips the switch” to become symptomatic. Folks with compromised immunity have all kinds of problems  and the longer it goes on without treatment, the tougher it can be on the body. For me, those other problems are an autoimmune condition of the called Bechets, IBS and myofacial pain issues. My symptoms often happen in patterns and groups called “flares” and they include recurrent and longer lasting infections, open sores primarily in my mouth and throat but can affect all membranes, headaches and head/neck pain, GI issues, joint pain and neuropathy. I experience significant fatigue and require a good deal of extra rest to perform normal functions.

For my situation, the primary pharmaceutical treatments are IVIG subcutaneous infusions once a week, immune-suppressant medication, injections and daily preventative medications along with other rescue medications when necessary. I go for Accupuncture, physical therapy, lymphatic drainage treatments and myofacial release frequently.
We have a wonderful and loving nanny to help with my two boys and have increased our house help. I can definitely tell that I am more forgetful and foggy headed but I am more patient with myself and I know I have good days and bad days.

All in all, I am adjusting to a new normal for now and have a wonderful team around me. I can assure you that in the past three years I have done everything to figure out why my body is ill and how we can find and restore wellness and health. This blog is an outpouring of all of the knowledge, research, effort and passion. I hope it will enliten someone else’s path to wellness.

Written by admin